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Treating Stiff Heart Syndrome
Cardiac Amyloidosis: Treating Stiff Heart Syndrome
Launched
2020 January
<p><strong></strong>Help us improve care for cardiac amyloidosis patients.</p>
Help us improve care for cardiac amyloidosis patients.
Cardiac amyloidosis was once considered a rare condition. But doctors have discovered that many more people are affected by this fatal disease. The symptoms can be difficult – ranging from swollen ankles to shortness of breath to carpal tunnel syndrome – and can easily be ignored or mistaken for more benign conditions.
Progress
Money raised to date
$ 0
01
What
An Insidious Enemy
The MUHC is passionate about improving care and fixing broken hearts. Cardiac amyloidosis is far more widespread in our community than previously imagined. The MUHC launched the Cardiac Amyloidosis Program, recruiting an internationally renowned expert from the Cleveland Clinic, Dr. Michael Chetrit, as program lead.
02
How
Skip Beloff Champions Care for Little-known Heart Condition
Charles “Skip” Beloff was just returning from an Italian vacation with his wife when he began to experience some strange symptoms. He went from enjoying the hot weather and great food of Italy to lightheadedness and shortness of breath. Athletic his entire life, Beloff had never experienced any serious health issues. Then, his ankles began to swell. Worried what the symptoms might mean, he made an appointment to see a doctor right away.
“I am forever grateful that I chose to take agency over my health in that moment, because what I was about to discover was something I could have never imagined.” -Skip Beloff, Patient
